Organizations |
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South Africa |
Australia |
Belgium |
Brazil |
Canada |
England |
Finland |
France |
Germany |
Iceland |
Ireland |
Israel |
Italy |
Netherlands |
Norway |
New Zealand |
Spain |
Sweden |
Ukraine |
United States |
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Canada
Canadian Hemochromatosis Society
Suite 272 - 7000 Minoru Blvd
Richmond, BC Canada
V6Y 3Z5 Toll-Free (Canada): 1-877-BAD-IRON (1-877-223-4766)
Tel: (604) 279-7135
Fax: (604) 279-7138
E-mail:office@cdnhemochromatosis.ca
Web: www.cdnhemochromatosis.ca
http://www.cdnhemochromatosis.ca/index.php The home page of the Canadian Hemochromatosis Society
Canada - French
Institut quebecois de l'hemochromatose
I do not have an address or phone number at this time, just their website.
>http://www3.sympatico.ca/sylvie.desjardins3/ - Website not active
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Australia
Haemochromatosis Society of Australia
Margaret Rankin
PO Box 154
412 Musgrave Road
Coopers Plains, 4108
Tel: 07.3345.7583
http://www.haemochromatosis.org.au/
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Belgium
Ignace Hindrick
Drogenbroodstraat 35
Egem B-8740
No active website at this time
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Brazil
Dr. Marco A. Lacerda
R. Dona Branca do N. Miranda
Curitiba 517
Tel: 011.554.199.40887
http://br.geocities.com/hemocromatosebr/hemocromatosebr.html - Website not active
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England
The Haemochromatosis Society
Janet Fernau
Hollybush House
Hadley Green Road
Barnet Herts EN5 5PR
Tel: 0181.449.1363
http://www.ghsoc.org/home.html - Website not active
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Finland
The Wasa Workgroup on Intestinal Disorders
c/o Hans Björknäs, GASTROLAB, Kirkkopuistikko 18 B 37, 65100
Vaasa, Suomi
Puh/Fax: 06-3124055
E-mail: info@gastrolab.tk
http://www.gastrolab.net/ksqhekrf.htm
http://www.gastrolab.net/kslinks.htm
http://www.gastrolab.net/ks1hake.htm
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France
Association Hémochromatose France
Pierre-Marie Morel
Jean Guérin
Délégué Régional
B.P. 7777
Nimes Cedex
30912
Tel: 04.66.64.52.22
Tel: 04.66.62.93.87
E-mail:hemochromatose@wanadoo.fr
E-mail:hemoch@wanadoo.fr
http://perso.orange.fr/hemochromatose/
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Germany
DEUTSCHE Haemochromatose Selbsthilfe Gruppe
Haemochromatose: Dr. Sven Gehrke: Universitat HEIDELBERG
Deutsches Haemochromatose Discussionsforum
Zwitserland!
Hämochromatose -Vereinigung Deutschland e.V. (HVD)
Ulitzkastraße 23 51063 Köln Deutschland
Beitrittserklärung
http://www.haemochromatose.de/
http://www.haemochromatose-forum.de/
http://www.ikp.unibe.ch/lab2/hemc.html Hämochromatose-Sprechstunde Universität Halle
Herr Dr. Krummener -Innere Ambulanz-jeden Freitag v. 8.00 - 10.00 Uhr
Tel: 0345/557-0
http://www.gehrke.net/haemo/
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Iceland
Icelandic Hemachromatosis Society
Hreggviður Jónsson
Starengi 26
112 Reykjavík, Iceland
Tel: +354 893 6888
Fax: *354 562 6880
No active link at this time
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Ireland
Irish Haemochromatosis Association
Jim Fenton
Carmichael House
986 Glenbigh Road
Dublin 7
Tel: 01.838.8773
http://www.haemochromatosis-ir.com/
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Israel
David Goldenblatt
55PO Box 303
Haifa
31002
No active link at this time
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Italy
Associazione Nazionale Volontaria Per
Lo Studio Della Emocromatosi
Dr. Sylvia Fargion
University of Milano
Instituto Medicina Interna E,
Fisiopatol Medic
pad Granelli-Via F.Sforza, 35
Milano
23388200
2.55033752
http://www.uildm.org/opuscoli/altre/emo.htm
http://members.chello.nl/p.sterke/hh/chelloaart.htm/artikelen/ital.pdf
http://www.haematologica.it/
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The Netherlands
Hemochromatose Vereniging Nederland
Postbus 252
2260 AG Leidschendam
www.hemochromatose.nl
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Norway
Mr. Bjorn Schage
Melkeveien 5A
Oslo
N-0779
Tel: 4790023130
http://www.hemokromatose.no/ Associazione Volontaria Emocromatosi
E Malattie Sovraccarico Di Ferro
Dr. Beretta Silvano
Via Donizetti, 106
Medic. 1 S. Gerardo Monza
20052
Tel: 039.2333220
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New Zealand
New Zealand IronZ
Tony Aislabie
New Zealand Haemochromatosis Support & Awareness Group
PO Box 23-072
Papatoetoe
Web:www.ironz.org.nz
E-mail:info@ironz.org.nz
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Republic of South Africa
Haemochromatosis Society of South Africa
For more information contact the HSSA:
c/o Kirsten Alberts
PO Box 4951
Rivonia
2128 Johannesburg
Tel: 011.791.2919
Web:www.haemochromatosisza.org
E-mail:info@haemochromatosisza.org
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Spain
Organización Para La Lucha Contra La
Hemocromatosis Hereditaria
Dr. Albert Altès
Hematòleg. Hospital de l’Esperit Sant
c/Mossen Pons i Rabadà s/n.
Sta Coloma de Gramenet
Barcelona
Tel: 3860202 ext. 420
http://www.geocities.com/HotSprings/Villa/1284/
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Sweden
The Wasa Workgroup on Intestinal Disorders
c/o Hans Björknäs, GASTROLAB, Kirkkopuistikko 18 B 37, 65100
Vaasa, Suomi
Puh/FAX 06-3124055
Email:info@gastrolab.tk
http://www.gastrolab.net/ks1hake.htm go to hemosideros
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Ukraine
Inna Lubyanova
Institute of Occupational Health,
Academy of Medical Sciences of Ukraine
75, Saksagansky str.
Kiev
252033
380 44/220 6252
No active link at this time National Academy of Sciences of the Ukraine
Olga M. Mykhaylyk
PO Box 355
Kiev
252001
38044 252 57 71
No active link at this time
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United States of America
American Hemochromatosis Society (AHS)
Sandra Thomas
#104-4044 Lake Mary Blvd.
PBM 416
Lake Mary, Florida
32746
33483-5352
Tel: 407.829.4488
http://www.americanhs.org/
The Hemochromatosis Foundation Inc.
Tom Gallagher
PO Box 8569
Albany, New York
12208-569
Tel: 518.489.0972
http://www.hemochromatosis.org/
Hemochromatosis Information Society
3017 Princeton Dr.
Plano, TX 75075
Tel: 214.893.6960
Email:info@hemoinfo.org
Iron Overload Diseases Association
433 Westwind Drive
North Palm Beach, Florida
33408-5123
Tel: 561.840.8512
http://www.ironoverload.org/
Iron Disorders Institute
PO Box 2031
Greenville SC
29602
Tel: 864.292.1175
http://www.irondisorders.org/ Your Genes, Your Health
A Multimedia Guide to Genetic Disorders
Funded by a grant from the Josiah Macy, Jr. Foundation
http://www.ygyh.org/?syndrome=hc
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